Welcome to Baby Hearts Press!

Baby Hearts Press is an independent publishing company that has been providing books and resources for the congenital heart defect (CHD) community since 1997. Owner and founder, Anna Jaworski, is the mother of a young adult with the complex congenital heart defect known as hypoplastic left heart syndrome (HLHS). She is the author of two books, editor of two books, a contributor to a number of books as well as a public speaker and internet talk radio show host of Heart to Heart with Anna.




The Heart of a Mother

The Heart of a Mother



Edited by Anna Marie Jaworski

Foreword by Edward L. Bove, M.D.



Baby Hearts Press, 1999

ISBN: 0-9652508-1-4



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Table of Contents



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Foreword by Edward L. Bove, M.D. i
Preface by Anna Jaworski iii
Introduction by Judy Norwood v


Discovery

.

Chapter One: Discovering Heart Defects In Utero
A Brother for Markie by Christine Prior 3
Learning to Love and Trust God by Kerrie Van Eck 7
Getting a Better Look by Edie Spears 13
God Doesn't Make Mistakes by Caroline Ahrens 20


Chapter Two: HLHS Care Options

.

Cardiac Transplantation
Happy Lifeday, Little Angel by Amanda Eason 26
The Right Heart for Travis by Dawn Martin 30
Compassionate Care
Letting Go by Kari Barr 35
A Letter to Ethan by Kelley Madden 39
The Norwood Procedure
Giving Tyler a Chance by Rene Winters 42
A Born Fighter by Cindy Tishka 46
Pioneer Woman by Jill Sorensen 49


Chapter Three: Special Problems, Special Solutions
Feeding Problems by Jennifer Nachbur 54
Developmental Delays--Physical by Caroline Ahrens 56
Developmental Delays--Speech and Language by Anna Jaworski 62


Support

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Chapter Four: The Life Givers
My Special Son by Karen Brandle 71
Hope in Tomorrow by Bonnie Munden 76
My Son, Heart and Soul by Jeanne Imperati 82

.

Chapter Five: More than a Mom
Taking Care of Things by Anita Moreno Marcelo 90
Never More Than You Can Handle by Brenda Vignaroli 93
A Stepmother's Story by Karen Pritchett 98

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Chapter Six: Military Moms
In the Navy by Gabriele Stiltner 102
The Army Way of Life by Lou Ann Wright 106
Overseas with the Air Force by Shiloh Hanshew 112

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Chapter Seven: Grandmothers' Stories
Part of the Team by Carol Self 120
Allowing Jane to Focus on Marcus by Clarice Warrick 123
Supporting a Mother's Love by Linda McAdam 126
Being Strong for Teresa by Joanne Clarkson 129
A Tribute to My Mother by Anna Jaworski 133

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Chapter Eight: Mothers Around the World
A Little Bit of Heaven--Canada by Carolyn Thompson 138
A Miracle--Germany by Beate Lemmer 142
Chrysanthemums for Paesan--Singapore by Helen Ng 147
Running the Race--Australia by Lyn Chappell 152
A Light in My Life--New Zealand by Jasmina Henderson-Rauter 157

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Chapter Nine: Mothers in the Hospital
Our Love for Alex by Julie Schlapfer 172
Supporting Sadie by Holly Scheyer 174
Finding the Good by Patty Roswick 179
A Mommy's Feelings by Tracy Adams 180

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Chapter Ten: Teaching Others, Learning Ourselves
Internet Innovator: Mona Barmash 184
Resourceful Librarian: Alysanne Crymes 186
Joining the AHA: Michelle Rintamaki 186
Saving Our Children Through Educating Ourselves by Lenore Cameron 188

.

Chapter Eleven: Mothers As Advocates
How To Be An Advocate by Tricia Christensen 194
Working with the Media: Jane Hunt 200
Seeing Myself as an Advocate: Anna Jaworski 202
Helping a Friend: Sheri Berger 203
HLHS Resource: Laura Ulaszek 204
CHD Leader: Sally Pearson 205
Support/Advocacy Groups 207

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Chapter Twelve: Shooting Stars
My Candle in the Wind by Deb Gilmore 214
387 Pictures by Aleta Riesberg 217
An Angel's Cause by Deirdre Bronchick 226
My Shooting Star by Jan Heckman 232
Face of a Child by Dolly Lee 234


Hope

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Chapter Thirteen: Life After Surgery
A Birthday Reminiscence by Deanna Brennan 237
Having a Healthy Baby by Deb Chapman 240
An Anniversary by Anna Jaworski 247

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Chapter Fourteen: Mothers With Congenital Heart Defects
Mind Over Matter by Michelle Veschi 251
Leading the Troops by Carolyn Wise 253
A Baby for Allison by Allison Matthews 257
A Healthy Baby by Becky Blauvelt 260

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Chapter Fifteen: Rites of Passage
Summer Camp by Beth Hutchinson 268
Moving Day by Arlyn Kerr 273
Karen's New Car by Mary Kay Klein 279
Victoria's Ski Trip by Rita Scoggins 282
Camp Del Corazon by Jill Sorensen 284
When Milestones Become Miracles by Cheryl Goldstein 286


Appendix A: Native Language Essays
Lebens und Leidensweq eines herzkranken Kindes (Beate Lemmer) 293
Tjasijeva Zgodba (Jasmina Henderson-Rauter) 297
Appendix B: Summer Camps (in the United States) 305
Appendix C: Cardiac Anatomy
Basic Heart Anatomy 307
Pediatric Heart Anatomy 308
Glossary of Terms 309





DISCLAIMER:

This book is designed to provide supplementary information to parents. This information is not intended as a substitute for medical advice. Parents should consult with medical personnel whenever they feel compelled, regardless of what is written in this book.

If you do not wish to be bound by the above, you may return this book to the publisher for a full refund.






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