Welcome to Baby Hearts Press!

Baby Hearts Press is an independent publishing company that has been providing books and resources for the congenital heart defect (CHD) community since 1997. Owner and founder, Anna Jaworski, is the mother of a young adult with the complex congenital heart defect known as hypoplastic left heart syndrome (HLHS). She is the author of two books, editor of two books, a contributor to a number of books as well as a public speaker and internet talk radio show host of Heart to Heart with Anna.




Anna Marie JaworskiAnna Jaworski

Founder/Owner of Baby Hearts Press

anna@babyheartspress.com



Owner and founder of Baby Hearts Press, Anna Jaworski is the mother of a young adult with a complex, congenital heart defect known as hypoplastic left heart syndrome. As a concerned mother, she looked for resources to help her understand her son's condition. In 1994, those resources were nowhere to be found, so Anna started writing resources and making them available to parents everywhere.



Hypoplastic Left Heart SyndromeAnna's first book was Hypoplastic Left Heart Syndrome: A Handbook for Parents. The book has been reviewed by Library Journal twice and has become a staple in many hospitals that treat children with hypoplastic left heart syndrome.

My Brother Needs an OperationWhile preparing Alex and Joey for Alex's second open-heart surgery, Anna sought resources to help her older son, Joey. At the time Joey was a toddler and he was extremely affected by being separated from the family during Alex's first, emergency surgery. Anna hoped to find a book to help Joey through another surgery and hospitalization. She couldn't find the resource she was looking for in print. There was a book that looked promising, but it was out of print and not available at her local library or through inter-library loan. After Alex recovered from his second open-heart surgery, Anna decided that she needed to put together a resource for families like hers. My Brother Needs an Operation is Baby Hearts Press only children's book. It tells Joey's story and also has a place in the back of the book for the reader to share his or her own experience, making it a keepsake book for the whole family.

Heart of BooksAnna met many people from around the world thanks to the internet beginning in the late 1990s. She also helped start a support group in Austin. That support group, Milagros, enabled Anna to meet people locally who had children with congenital heart defects. With the support of fellow heart mom, Jane Hunt, Anna decided to publish a book for other heart mothers that told their stories. The result was The Heart of a Mother which Anna published in Panama City Beach, Florida. Upon returning to her beloved Texas, Anna started working on The Heart of a Father: Essays by Men Affected by Congenital Heart Defects. This companion book to The Heart of a Mother contains essays and poems by over 50 men from around the world. Many of the men were husbands to the women who wrote for The Heart of a Mother so readers can see what happened to the children they were introduced to in the mothers' book. After Bob Daigneault became the co-editor, the book was finally published in 2009.

Milagros also helped Anna start a whole new adventure -- public speaking! Anna was Milagros' first speaker at their first support group meeting. Since then Anna has spoken across the United States and in Canada. In 2001 Anna joined Toastmasters International and today she is a Distinguished Toastmaster, which is the highest designation any Toastmaster can earn.

Anna has written numerous articles and contributed to two medical textbooks. She has served as a witness in a federal court case. She has also had the joy of personally meeting people from around the world -- heart heroes and warriors she is happy to call friends.

StudioIn July 2013 Anna got a phone call that would change her life. Josh Bernstein from VoiceAmerica called Anna to talk about the possibility of being a Host on a talk radio show. That phone call was the beginning of Anna's life as the Host of "Heart to Heart with Anna." Anna really enjoyed working with the VoiceAmerica staff but for financial reasons, she had to leave at the end of her first season.

Anna moved the entire first season of shows over to BlogTalkRadio in 2014. She edited the shows and added another segment to the end of every show which was then re-broadcast with the new live segment. Some of the former Guests returned and some of the shows featured callers to the show or questions from Listeners.

The theme for Season One of "Heart to Heart with Anna" was You Are Not Alone. The theme for Season Two is There is Hope. You can listen to "Heart to Heart with Anna" by going to the "Heart to Heart with Anna" BlogTalkRadio website. All of the shows are on there. You can also visit the "Heart to Heart with Anna" website for more information.




Publications

"Endnote: Helpless in the ICU," Critical Care Nurse, October 1995.

Hypoplastic Left Heart Syndrome: A Handbook for Parents, Baby Hearts Press, Mound, TX, 1996. (Revised in 1997 and 1998)

"What It Means to Be the Parent of a Child with a Heart Defect," Baby Hearts Press, Mound, TX, 1996.

"A Parent's Perspective: An Anniversary," Heart to Heart Newsletter, Pediatric Heart Foundation, December, 1998.

"Helping Children Set Goals," Denver Parenting Magazine, summer 1999.

"A Day to Remember," and "Goal-Setting," Bay Parents & Family Magazine, September 1999.

"Stop on Red -- Kids Ahead!" "Why do We Celebrate Halloween?" and "Halloween Safety Tips: to prevent accidents this Halloween," Bay Parents & Family Magazine, October 1999.

Article about HLHS Featured in The Scrub Sink on Heart Surgery Forum, 1999.

"The Heart of a Mother" (editor and contributor), Baby Hearts Press, Panama City Beach, FL, 1999.

"How do we tell our child she/he will need open-heart surgery?" Children's Heart Services Newsletter, July/August, 2000.

"What Does It Mean To Be the Parent of a Child With a Heart Defect?" Children's Heart Services Newsletter, May/June 2001. (reprint)

"CHD Awareness - Seven Ways You Can Help Raise It," www.congenitalheartdefects.com, 2002.

"Hypoplastic Left Heart Syndrome: A Parent's Perspective," Anna Jaworski (contributor) in Hypoplastic Left Heart Syndrome, Hani Hennein, M.D. and Edward Bove, M.D. (ed.), Futura Publishing Company, Armonk, NY, 2002.

"You Are Not Alone" in Circle of Hearts Family Support Network Newsletter, Spring/Summer 2003.

"The Personal Perspective," Anna Jaworski (contributor) in Hypoplastic Left Heart Syndrome, Jack Rychik, M.D. and Gil Wernovsky, M.D. (ed.), Kluwer Academic Publishers, Norwell, MA, 2003.

"The Heart of a Father," Anna Marie Jaworski and Bob Daigneault (editors), Baby Hearts Press, Temple, TX, 2009.

"Build a Better Robotics Team," Anna Jaworski (contributor) in Toastmasters Magazine, February 2010.

"Planning to Cherish Family Time Together," Anna Jaworski (contributor) in Cover 2 Cover Magazine, May, 2012.

"Twenty-Six Happy Years of Marriage After Separation," Anna Jaworski (contributor) in Ladies Flight: Surviving Unwanted Divorce, April 3, 2012.

"Finding the Good," Anna Jaworski (contributor) in "Finding the Good in Your Marriage," AlwaysNewYou, March 2012.

"Maintaining Successful Opposite-Sex Relationships Outside Your Marriage," Anna Jaworski (contributor) in Ladies Flight: Surviving Unwanted Divorce, June 6, 2012.

"Mow Their Lawn," Anna Marie Jaworski (contributor) in 101 Awesome Things to Do for Someone Who's Sick by Elaine Wilkes, 2013.

Hypoplastic Hearts Through the Years to be edited by Anna Jaworski, Technical Editor: Robert Campbell, M.D. (in progress)


Presentations

Guest Speaker: "Alexander's Story," presented at Milagros (Central Texas Heart Support Group), Brackenridge Children's Hospital, July 8, 1996.

Keynote Address: "The Heart of a Mother," presented at Parenting Your Heart Child: You are No Longer Alone, Emory University, Atlanta, GA, October, 21, 2000.

Keynote Address: "Growing Up with Congenital Heart Defects -- Yesterday and Today," and Concurrent Session Speech: "The Changing Needs of Parents As Children Grow Up with CHDs," presented at the Third Annual Growing Up with Heart Disease Conference, Chan Centre for Family Health Education, Vancouver, British Columbia, Canada, September 29-30, 2001.

Keynote Address: "Sometimes Life Doesn't Go As Planned," presented at Camp Joy Heart Family Retreat, Joy Outdoor Education Center, Cincinnati, OH, April 26-28, 2002.

Keynote Address: "A Parent's Journey," presented at Heart Talk 2002 -- A Journey of the Heart, IWK Health Centre, Halifax, Nova Scotia, Canada, July 19-20, 2002.

Keynote Address: "Anna's Journey of the Heart," presented at Congenital Heart Defect Awareness Day at the Statehouse in Boston, MA, February 14, 2003 for the Massachusetts Heart Coalition.

Keynote Address: "Celebrating a Mother's Heart," presented at Mother's Day Luncheon Benefiting Children with Congenital Heart Defects, Rocklin, CA, May 3, 2003, sponsored by the Children's Heart Fund Family Network.

Keynote Address: "Building Bridges to Tomorrow," presented at Growing Up with Heart Disease Conference, Winnipeg, Manitoba, Canada, May, 2004 for the Children's Hospital Foundation of Manitoba.

Keynote Address: "Raising a Child with a Congenital Heart Defect: The Balancing Act" and Concurrent Session Speech: "My Child's Bright Future," presented at the American Heart Association's Heart Heroes Conference, Miami, Florida, October 6, 2007.

Keynote Address: "Raising a Child with a Congenital Heart Defect" and Second Session Speech: "Planning for A Bright Future," presented at the American Heart Association's Heart Heroes Conference, Panama City Beach, Florida, October 11, 2008.

Keynote Address: "Raising a Child with a Congenital Heart Defect: The Balancing Act" and Second Session Speech: "Planning For a Bright Future," presented at the American Heart Association's Heart Heroes Conference, Orlando, Florida, October 3, 2009

Guest Speaker: "My New Mission In Life" , presented at Onion Creek Arts and Literary Club, Austin, Texas, January 8, 2010.

Keynote address: "Finding Balance When a Hurricane Hits!" and member of panel discussion "Transitioning: A Bright Future for American Heart Heroes Kids," presented at the American Heart Association's Heart Heroes Conference, Tampa, Florida, October 9, 2010.

Guest speaker: "Have You Ever Dreamed of Becoming a Writer?" presented at The Temple Literacy Council Books for Lunch Program, Temple, Texas, July 18, 2012.

Guest speaker: "A Killer Amonst Us," presented at The Children's Heart Foundation - Texas Chapter Debut Party, Austin, Texas, February 13, 2013.

Guest speaker: "Have You Been Touched by Toastmasters?" presented at The Lion's Club, Temple Texas, April 10, 2013.


Websites

BabyHeartsPress.com, owner since January 19, 1999.

CongenitalHeartDefects.com, owner since February 26, 2002.

Anna's Blog for Baby Hearts Press, owner since May 21, 2007.

HeartToHeartWithAnna.com, internet talk radio show, host since November 2013.

Heart to Heart with Anna Blogtalkradio Host Page, host since November 2013.




Media Appearances



Episode #15: Special Guest Appearance, 9/2/14, Anna Jaworski (Host) and Guest (TBD) discuss how becoming a CHD Advocate has been life-changing experience and what each of us can do to be better advocates for the heart community.

Episode #14: Adult Survivors on Pregnancy or Starting a Family, 8/26/14, Anna Jaworski (Host) and Guests (TBD) discuss special considerations that must be undertaken for Adult CHD Survivors when they decide to get pregnant or start their family.

Episode #13: Making Memories Everyday, 8/19/14, Anna Jaworski (Host) and Guests (TBD) discuss ways to make everyday a special day. From inexpensive and fun rituals to special ways of celebrating holidays or other special occasions, we’ll talk about how to do it with heart.

Episode #12: School Issues: Bullying, Parent Advocacy & Making Schools Safe for CHD Survivors, 8/12/14, Anna Jaworski (Host) and Guests (TBD) discuss bullying of CHD survivors, strategies for overcoming bullying or ways to prevent it and, most importantly, how to make the school environment safe for our CHD survivors.

Episode #11: Babysitting and Daycare for CHD Survivors, 8/5/14, Anna Jaworski (Host) and Guests (TBD) discuss strategies and experiences in leaving a CHD survivor in a daycare situation or with babysitters. We will discuss things to look for in a daycare or babysitter and how to best prepare everyone involved for a good transition.

Episode #10: Working Dads versus Stay-at-Home Dads, 7/29/14, Anna Jaworski (Host) and Guests Michael Madson and Chris Perez discuss the pros and cons of staying home or going back to work when a family has a child with a congenital heart defect.

Episode #9: Breastfeeding Your CHD Baby, 7/22/14, Anna Jaworski (Host) and Guests Amelia Willis and Lauren Watson discuss success stories and frustrations with breastfeeding a baby with a congenital heart defect. Our Expert Guest, Marie Biancuzzo, will debunk common myths surrounding a mother’s ability to breastfeed a baby with a congenital heart defect.

Episode #8: Adult Congenital Heart Defect Survivors Finding Love, 7/15/14, Anna Jaworski (Host) and Guests: CHD Survivors Jeni Busta and Lauren Bednarz, as well as spouses Nick Busta and Chris Bednarz discuss what it was like to find love and concerns that most people have regarding loving someone with a critical congenital heart defect.

Episode #7: Gastrointestinal Issues and Feeding Tubes in the CHD Community, 7/8/14, Anna Jaworski (Host) and Guests: Heart Mom Christie Saunders and Clinical Psychologist and Feeding Therapist with NoTube discuss the complexities of having a child on a feeding tube and the importance empowering parents regarding weaning a child from a feeding tube.

Episode #6: How Military Families Deal with Having a Child with a Congenital Heart Defect, 7/1/14, Anna Jaworski (Host) and Guests: Heart Moms Chelle McIntyre-Brewer and Andrea Quirk address issues of importance to military families raising a child with a congenital heart defect, including important organizations that can help parents negotiate the difficulties with insurance and getting proper care for our medically fragile children.

Episode #5: Sports and Boys with Critical Congenital Heart Defects, 6/24/14, Anna Jaworski (Host) and Guests: Heart Dads Kenneth Utz and Tommy Jackley and CHD Survivor Richard Utz discuss their experiences with sports growing up, the teams they are huge fans of and what it’s like to grow up knowing it’s not possible to play sports like heart-healthy boys can.

Episode #4: Dealing with a Long Hospital Stay, 6/17/14, Anna Jaworski (Host) and Guests: Heart Mom Callie Rickard, CHD Survivor Alex Jaworski and Certified Child Life Specialist Lynn Davis discuss issues involved when dealing with a long hospital stay and how parents and patients can be empowered to endure the uncertainty of any hospitalization.

Episode #3: Failure to Thrive: Oral Aversions and Nutrition for CHD Survivors, 6/10/14, Anna Jaworski (Host) and Guests: Heart Mom Danielle Leppo and pediatric dietician Kristi King discuss the diagnosis of Failure to Thrive and why some babies and children with congenital heart defects suffer from oral aversions and poor nutrition and what parents can do about it.

Episode #2: Rainbow Babies: Pregnancy After Losing a Child to a CHD, 6/3/14, Anna Jaworski (Host) and Guests: Bereaved Heart Moms Sheri Turner and Ashley Halligan discuss what it’s like to lose a child to a congenital heart defect while hoping for a healthy baby after such a trauma.

Episode #1: Chiropractic Care for CHD Survivors, 5/27/14, Anna Jaworski (Host) and Guests: Heart Mom Callie Rickard and Chiropractor Dr. Tom Saeman discuss the benefits of using chiropractic care with survivors of congenital heart defects.

Heart to Heart with Anna, Season 2



Born to Be Breastfed, 3/31/14, Marie Biancuzzo (Host) and Guests: Anna Jaworski with fellow heart moms, Nancy Sands and Amy Gerrish Bennett. Marie Biancuzzo, RN debunks the myths surrounding breastfeeding a CHD baby.



Episode #15: Learning Disabilities and Possible Brain Injury in Children with Complex Congenital Heart Defects, 2/18/2014, Anna Jaworski (Host) and Guests: Pediatric Cardiologist Dr. Jane Newburger and Pediatric Neurologist Dr. Caitlin Rollins (Boston Children’s Hospital), Heart Mom Stephanie Gannaway and Special Education Advocate Lisa O’Connor discussed brain injuries and learning disabilities that can occur in children with complex congenital heart defects, what therapies are available as well as programs available in the schools for school-age children and tests and specialists available to help our children.

Episode #14: Congenital Heart Defect Advocacy, 2/11/2014, Anna Jaworski (Host) and Guests: Heart Mom and National Program Coordinator for Mended Little Hearts Jodi Lemacks, Heart Mom and President/CEO of the Pediatric Congenital Heart Association Amy Basken and CHD Survivor Jon Ritchings, Jr. discuss how anybody can be an advocate for the congenital heart defect community, activities where they have been advocates and when advocacy is necessary.

Episode #13: What is Normal Child Development in Children with Complex Congenital Heart Defects? 2/4/2014, Anna Jaworski (Host) and Guests: Speech Pathologist and Heart Mom Eileen Pearlman, Special Education Teacher and Heart Mom Vicki Lucas and Pediatric Neuropsychologist Dr. Dawn Ilardi (Children’s Healthcare of Atlanta and Sibley Heart Center) discuss what “normal” means in the world of complex congenital heart defects, common developmental problems children with complex congenital heart defects experience and who can help.

Episode #12: Non-Cardiac Health Issues for Survivors with Complex Congenital Heart Defects, 1/28/2014, Anna Jaworski (Host) and Guests: CHD Survivor Lauren Bednarz, Heart Dad David Simpson, Ph.D. and Dr. Amy Roberts (Boston Children’s Hospital) discuss conditions like congenital scoliosis, eye problems, protein-losing enteropathy, as well as, when parents or survivors should seek help and who can provide help to them.

Episode #11: How Parents’ Relationships are Affected by Having a Child with a Congenital Heart Defect, 1/21/2014, Anna Jaworski (Host) and Guests: Heart Parents Brenda Vignaroli, Leah Lowrey and Frank Jaworski discuss how having a child with a congenital heart defect affected the relationship they had with their spouse, whether or not they are still married to the same spouse, and advice from what they learned over time.

Episode #10: Sports and Extra-Curricular Activities for Congenital Heart Defect Survivors, 1/14/2014, Anna Jaworski (Host) and Guests: CHD Survivors Mark Cummings, Victoria Scoggins and Alex Jaworski discuss what it was like growing up with a critical congenital heart defect and what sports and extra-curricular activities they enjoyed in their teenage years.

Episode #9: Surviving the Teenage Years with a Congenital Heart Defect, 1/7/2014, Anna Jaworski (Host) and Guests: CHD Survivors Monica Mossey, Tara McFadden and Jeni Busta discuss what it was like going through the teenage years with a critical congenital heart defect, some of the situations they faced (like bullying and having learning disabilities) and how they have thrived.

Episode #8: Losing a Child to a Congenital Heart Defect, 12/31/2013, Anna Jaworski (Host) and Guests: Angela Roberts (I Have Rights, Too), and Heart Moms Sheri Turner and Dara Glagola discuss how parents can survive losing a child to a congenital heart defect whether the child is stillborn, doesn’t survive surgery or even lives to adulthood and then dies. The show also focuses on how each of these mothers have turned their grief into a vehicle to help others.

Episode #7: Snowflakes: How Each Heart is Unique, 12/24/2013, Anna Jaworski (Host) and Guests: Heart Mom Kristi Pena (Crusade4Christopher), Dr. Gerald Marx (Boston Children’s Hospital), and Cynthia Weston, RN (UTHSC, San Antonio) talk about how each heart is unique, what current tests are done to identify heart defects and how to help our children born with CHDs to survive and thrive.

Episode #6: Cora’s Law and Why It’s Important, 12/17/2013, Anna Jaworski (Host) and Guests: Heart Moms Kristine McCormick, Kim Willis, Annamarie Saarinen and Indiana Senator Brent Waltz discuss pulse oximetry testing and how testing newborns can save lives.

Episode #5: The Genetics of Congenital Heart Defects, 12/10/2013, Anna Jaworski (Host) and Guests: Heart Mom Jennifer Reed, Dr. Angela Scheuerle (Tesserae Genetics), CHD Survivor Ben Weisbuch (Heart Hope Foundation), and Dr. Woody Benson (Children’s Hospital of Wisconsin) discuss what new genetic tests are available to assist with the diagnosis of CHDs and other problems, who should have genetic testing and how genetic testing can save lives.

Episode #4: Siblings in the Congenital Heart Defect Community, 12/3/2013, Anna Jaworski (Host) and Guests: CHD Siblings Laura Ryan and Joey Jaworski and Don Meyer (Sibling Support Project) discuss what it’s like being the sibling of a child with a heart defect and what services are available for healthy siblings.

Episode #3: Organ Donation and Transplantation, 11/26/2013, Anna Jaworski (Host) and Guests: Heart Mom Eileen Pearlman, CHD Survivor Jessica Cowin, Heart Moms Kathy Keller and Emily Wiebke, and CHD Survivor Anthony Pugliese discuss their experiences regarding waiting for and/or receiving a heart.

Episode #2: Post-Traumatic Stress Disorder, Anxiety and Survivor’s Guilt in the CHD Community, 11/19/2013, Anna Jaworski (Host) and Guests: Heart Dad Bryce Bagwill and CHD Survivors Lauren Bednarz and Yasmin Southwood discuss how being born with a CHD or being the parent of a child with a CHD can lead to one of the conditions listed above. The Guests also discuss helpful ways of dealing with these conditions.

Episode #1: You are Not Alone, 11/12/2013, Anna Jaworski (Host) and Guests: Grandparents Jesse and Nancy McCain, Heart Mom Callie Rickard and CHD Survivor Carl Wolford discuss the feelings of isolation that can occur when thrown into the world of congenital heart defects and how they now can appreciate that they are not alone.

Heart to Heart with Anna, Season 1



Family Caregivers Unite! VoiceAmerica Empowerment Channel. "Baby Hearts," 9/23/2013, Anna Jaworski and Erin Engwall were guests on Dr. Gordon Atherley's program discussing how caregivers are affected by having a child with a heart defect.

The Talk of the Town with James Harrison, KTEM Radio 1400 AM, June 7, 2012, Anna Jaworski and Tim Manson were guests discussing the benefits of Toastmasters.

The Talk of the Town with James Harrison, KTEM Radio 1400 AM, June 11, 2012, Anna Jaworski talked about Congenital Heart Defects.

The X Zone radio show , August 17, 2010. Anna Jaworski - Hypoplastic Left Heart Syndrome

Fox 7 (TV), Author interview for The Heart of a Father with Bob Daigneault, June 18, 2009.

The Lori Moore Show (AM Radio) discussing "A Day for Hearts: Congenital Heart Defect Awareness Day" on February 7, 2000.

The Bill Anthony Show (AM Radio) discussing "A Day for Hearts: Congenital Heart Defect Awareness Day" on February 8, 2000.

The Bob Sands Show (AM Radio) discussing "A Day for Hearts: Congenital Heart Defect Awareness Day" on February 14, 2000.

WKGC Almanac (National Public Radio) Author Interview, March 7, 2000.

San Antonio Living (TV), Author Interview for The Heart of a Mother with Shiloh Hanshew and Dawn Martin, March 22, 2000.

WBZ Radio 1030 AM with Jordan Rich, Anna Jaworski and Sheri Turner discuss CHD Awareness Day in Boston, MA, February 9, 2003.


Articles Featuring Anna Jaworski

"Luckiest parents in the world: Youngster's survival prompts mother to write book, form support group," by Larry Kennedy, The Gatesville Messenger, Gatesville, TX, Wednesday, June 26, 1996.

"Playing by heart," by Troy Espe, The News Herald, Panama City, FL, May 28, 1999.

"Panama City Children's Medical Services Office Clowns Around with Families," Special Addition: Children with Special Health Care Needs: A Newsletter for Florida Families, February 2001.

"Students learn how 'Jump Rope for Heart' program helps others with heart problems," by Nicole Edwards, Temple Daily Telegram, Temple, TX, February 16, 2001.

"A story that touches hearts: One central Texas woman's publishing company is born out of a personal experience," by Rebecca Johnson, The Bells: Mary Hardin-Baylor University News, Belton, Texas, March 11, 2003.

"Interview With Anna Marie Jaworski - Owner of Baby Hearts Press: A Publisher With A Mission!" by Midwest Book Reviewers Bookwatch: Book Reviews, Book Lover Resources, Advice for Writers and Publishers, Volume 2, Number 8, August 2003.




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